The National Institutes of Health (NIH) has put the establishment of a way to combine data from different sources at the top of its list of initial priorities for President Obama’s precision medicine initiative.
Such a system is essential if the NIH is to pull off its plan of making use of data generated by third parties.
The NIH has already identified some possible sources of data. Kaiser Permanente, the Mayo Clinic, the Marshfield Clinic in Wisconsin, Geisinger Health System and the U.S. Department of Veterans Affairs all have reportedly volunteered to contribute to the initiative, which aims to gather data on one million people. Before talks with these potential partners can advance, NIH wants to figure out how it will handle and combine their data.